Oliver has been feeling well and was thankfully not nauseated last night and this morning. We went to clinic to get his 30 minute infusion and are gearing up for tomorrow, which will likely be an 8 hour day in clinic. The infusion is only an hour but they’ve learned that it can be irritating to the bladder, so they will have him on constant fluids most of the day tomorrow. We expect that the worst of his chemo symptoms will be over the weekend, but I think it hits everyone differently.

We met with our oncologist today as well and the PET and MRI results look good. There’s something showing up on the PET scan still, but we think it may be some scar tissue. We will get both scans again 28 days post T-cell infusion, so it’ll be interesting to see if that spot changes at all.

We also found out that Ollie’s cancer is still at MRD of 0.3% (it hasn’t changed since the last course of chemo). If you remember from last year (almost the exact timing), we found out on Good Friday that he was in what they call a “deep remission” (they were unable to detect any cancer). The fact that his MRD hasn’t changed over the past month tells us that the cancer isn’t responding as well anymore to the chemo regimen that worked so well last year. It’s keeping the disease at bay, but can’t get him into remission at this point. We have all confidence, especially now after these results, that we are in the right place at the right time.

We hope that this trial is going to make a difference in Ollie’s case and all the kids who are diagnosed after him. This trial is available to us in part because of Project Stella, formed in 2017 by Stella’s parents. Stella passed away just after her fourth birthday and her parents wanted to try to change the outcomes for other children like her. This website is dedicated to children with the exact and very rare type of cancer that Oliver has.

Learn more here: https://www.projectstella.net/home

I added a particularly upsetting statistic from the website about the lack of funding for pediatric cancer (especially for rare cancers like Oliver’s).

April 2, 2026

April 1, 2026