June 20, 2025
Oliver is doing very well and his labs look great. The doctors feel like he is engrafting well and are happy with his progress.
He had a bone marrow biopsy today and was sedated for that. Poor guy spent two hours awake today from 03:30–05:30 naming every food he could think of and begging me to get it for him. He will be ready to chow down when he wakes up from the sedation.
The biopsy will take about a week to come back. They’re checking both for engraftment success and to make sure there is no residual cancer detected. The chances of residual cancer are very low at this stage, but overall he has a higher relapse risk because of his specific cancer genomics. His chances of beating this cancer for good are much improved after transplant—now better than 50% rather than (much) worse than 50% when he was first diagnosed—but we aren’t out of the woods. And because it’s so rare, no one knows exactly what the relapse risk really is, but they agree it’s under 50% now. Please pray it will never come back!
- Will